Bonnie's Brigade to Annihilate ALS
Join us for the MDA Muscle Walk.
As most of you know, I have been diagnosed with Amyotrophic Lateral Sclerosis (ALS), better known as Lou Gehrig's or motor neuron disease.
As you can imagine, I hit the web to find out all I could about this muscle-robbing disease. What is painfully obvious is that drug companies like to research and develop drugs that have a large population of potential patients, which this one isn't. Approximately 20 - 30k people worldwide per year have the disease, with most patients between the ages of 40-70. AND IT'S TOTALLY RANDOM.
There is only ONE approved drug for ALS, first developed in 1995 (Rilutek by Sanofi-Aventis Pharmaceuticals) and it's not that helpful. The research funded by MDA and others is close to finding at least one biomarker so that a diagnosis can be made, along with work towards targeted treatment therapies. There are also investigations into finding the root cause of the disease, and after 144 years after the first descriptions of the disease, it is still considered puzzling, with many different genes involved.
I need your help, more specifically; ALS via MDA needs your MONEY to continue the research currently underway. Please donate as much as you can to fight against this disease - remember, all donations are tax deductible, and for my US friends - this is one tax write-off that is not going away!
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