I'm participating in the MDA Muscle Walk and I need your help!
We are walking in the MDA Muscle Walk this year because we want to find a cure for our son Ian. When he was 5, he was diagnosed with duchenne muscular dystrophy. We live our lives dealing with what comes our way, in a semi-denial state. This past year DMD reared it's ugly head and brought a number of changes to Ian's and our lives. Ian had a sleep study and we discovered that he had at least 14.5 episodes of apnea per hour!(stops breathing) This causes the body to wake you up, so you start breathing again. He now uses CPAP at night, and we have seen a major improvement. His lung function is decreasing with some issues of low oxygenation for which we now carry an O2 monitor. Since this disease attacks the muscles, this is not unexpected, just way too soon for us.
We would love to have anyone join us for our walk, and if you can't join, please consider making a donation to our team.
Won't you please donate to these kids? Any amount will help.
Thank you so much in advance.
Brian, Michelle, Jacob, Freddie and Ian Worman
Make a Muscle. Make a Difference.
G'ma and Pa Cool
Gary & Chris Hubbard