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I'm pumped up about the MDA Muscle Walk.

Welcome to my Muscle Walk Personal Fundraising page!

When Hailee was 16 months old is about the time I had started noticing she wasn't like other kids her age...She was struggling learning to walk on her own and when she tried standing up she would push off of her legs which is called "Gowers Sign".  Call it " motherly instinct"  if you will, but it prompted me to really start asking questions and demand answers as to why my daughter walked the way she did and stood up the way she did.  After doing an MRI of her spine and blood tests and finally a muscle biopsy our little princess was diagnosed with Central Core Disease.  Still to this day tests are being done to figure out genetically where this disease comes from wether its my side or my husband's side.  With the help of our doctor's at the University of Utah and the MDA we are trying to raise money to help Hailee go to the MDA camp this summer where she will spend a week playing with other kids with similar muscle challenges!  Help me cross the Muscle Walk finish line and FINISH STRONG!  Join me at the Muscle Walk and we’ll have a great time for a great cause. Better yet, make a donation today, and help me reach my fundraising goal to help support the families who depend on MDA. Together, we grow stronger. 

Make a Muscle. Make a Difference.® 

Mrs. Stephani Gansen
54 percent of goal achieved.
Goal: $800.00
Achieved: $429.00

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