Intro letter
On March 23rd, I'm participating again in the MDA Muscle Walk in Phoenix. This year I'm proudly serving as Captain of Team Pompe. I will be joined by my devoted sons, Chris and Raymond, other Pompe patients, friends and family.
I'm walking in the MDA Muscle Walk this year because I want to continue to raise funds for research for Pompe disease, a neuromuscular disease. As you may know, after a five year journey, in 2007 I was diagnosed with Pompe. Currently, I am fortunate to receive enzyme replacement therapy. Today this is the only treatment available for Pompe patients. Every two weeks I receive an infusion of enzymes. Each infusion lasts four hours. This treatment is slowing the progression of my muscle weakness. Research and development for new therapies continue with the support of the MDA. Perhaps in the near future I can receive an oral form (pill) of treatment at home instead of in my physician's office. I support the MDA because of all the programs and resources they provide for patients and families. On March 23rd I will walk with the assistance of my walker/stroller. Team Pompe will include children and adults who are challenged with Pompe. Our family and friends will support our efforts to support the MDA.
Please consider sponsoring Team Pompe by joining our team or by making a financial contribution. If you supported me in the past, thank you! If you can make another contribution in any amount, a big thank you from the bottom of my heart! On behalf of Team Pompe, our families, and myself, sincere thanks for your kindness, generosity and love.
If you can, just click here to make a secure, online donation before March 23rd, 2013. I know there are many different walk events out there, but I chose the MDA Muscle Walk because MDA provides more comprehensive services to families with muscle diseases than any other organization. I like that the money I raise impacts families locally in our community.
If you prefer, you also can send your gift check made out to Muscular Dystrophy to me at the address listed below.
3484 N Park St
Buckeye, AZ 85396-8392
Thanks so much for helping me Make a Muscle and Make a Difference.
Kristen
P.S. I'm counting on you, so click here to donate.
If the link above does not work, please cut and paste the address below into the address bar of your Internet browser.
http://www2.mda.org/site/TR?fr_id=4073&pg=personal&px=1058787With love and appreciation,
Kristen Cusick
Make a Muscle. Make a Difference.
