I'm pumped up about the MDA Muscle Walk.
Welcome to my Muscle Walk Personal Fundraising page!
Thanks so much to everyone who is supporting my family physically, and financially while we walk for Muscular Dystrophy!!
The MDA holds a very special place in my heart and I am overwhelmed by the support we've recieved! Many of you know my story, but I'll share the brief version. I was diagnosed with Muscular Dystrophy when i was 16. Now I am in my early 30's and like all dystophies it has taken its toll, and most physical activiites are difficult. It is really hard trying to constantly adjust my role as a mom, wife, and individual when my physical abilities keep declining. It is hard, but i feel blessed by the wonderful people in my life (mostly everyone that will look at this page, thank you)
I have been supported by the MDA though their inspirational summer camps, brilliant doctors and researchers, support groups, medical equipment, and most importantly the super special people that inspire and strenthen me. This organization is full of amazing people doing great things for everyone affected by a muscle disease. This past summer I spent the weekend in Iowa with a team of doctors and researchers dedicated to understanding and treating my exact lype of MD, LGMD2i. For the first time since I fully understood my disease, I felt a little hope that there might be omething out there to help me and all of the great friends I've made going through the same thing. There is reason to have hope. We have brilliant minds in the medical world that are doing great things.
I am always emotional when i see the generosity and kindness people extend to the MDA, thank you for being apart of my story, and supporting our family and all of the families affected by the MDA. You are making a difference.
Make a muscle, make a difference!
Aaron and Lyla
Grace McGoran's Family
Kurt, Val, Ava, and Claudia Heidenreich
Mrs. Lindsay Foley
Tim & Sue