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This is very personal for me and my family! Please read the following from my daughter-in-law, Allison Sandlin:
On April 27, 2013, I will be participating in my second Muscular Dystrophy Association (MDA) Muscle Walk. My participation is personal. In November 2011, my father, Mark Heeg, was diagnosed with Amyotrophic lateral sclerosis (ALS), commonly known as Lou Gehrig's disease.
During the 2012 Muscle Walk, my dad was able to walk with his family and friends. This year, he will be rolling. My dad can no longer stand or walk. He can no longer get into bed, cross his legs, breathe, or eat without assistance. Despite the physical losses, however, we have not lost our love for each other as a family, the support from our friends, or the hope that one day there will be a cure for this terrible disease.
My family's hope for a cure and support has been provided by the wonderful people at the MDA. While the MDA is focused on finding a cure for ALS, the MDA also helps families cope and adjust to life with ALS. Through our quarterly MDA Appel Clinic visits, we have had access to the best specialists - neurologists, pulmonologists, physical therapists, social workers, occupational therapists and others. We have also had access to the best equipment and tools to make our lives easier - the Trilogy breathing machine, M300 power chair (we have affectionately named "Sparky"), a Hoyer lift, and an eye gaze computer.
Please join us in the Muscle Walk. We will have a great time supporting a great cause. You can also make a donation today and support the families who depend on MDA. Together, we grow stronger.
Bill and Norma Chaney
Gayle and Steve Brand
Janice Visinsky - Adaptations, Inc.
Laura Locastro Ogburn
Mrs. Michelle Sandlin
Steve Thistle/Pete Nye
The Piper Family
Wendy LaVoncher Cook