Bonnie has been living with a form of muscle disease called Inclusion Body Myositis (IBM) since about the year 2000. IBM is one of
the inflammatory myopathies, a group of muscle diseases that involves inflammation of the muscles or associated tissues, such as the blood vessels that supply the muscles. A myopathy is a muscle disease and inflammation occurs as a response to cell damage. For some people characteristics of
IBM include progressive weakness of the muscles of the wrists and fingers, the muscles of the front of the thigh and the muscles that lift the front of the foot. Some people also have swallowing difficulties. Unlike other inflammatory myopathies, the heart and lungs are not affected in IBM.
Our grandparents live in White Bear Lake. Regardless of what Grandma Bonnie may be facing, she loves to host friends and family, cook, read and knit.
Your donation would fund research advancement in treatments and cures for IBM. It would also fund support groups for those living with muscle disease and their caregivers. Our grandmother has enjoyed meeting other families through these groups and attends them regularly. It helps to fund clinical visits for those who need help to cover the cost of what insurance cannot cover. Your donation would also benefit the MDA Loan Closet for those needing used equipment they otherwise cannot afford.
The Muscular Dystrophy Association is a vital organization for people living with neuromuscular diseases. We thank you very much for your donation and helping our grandmother and many others in the fight against muscle disease.
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