My Story - In April of 2012, life changed for my family. My only son, Logan was diagnosed with Duchenne Muscular Dystrophy at age 5. For those unfamiliar with this disease, Duchenne muscular dystrophy is a terminal illness with no known cure that affects one in every 3,600 boys. Muscular dystrophy is caused by a deficiency of the dystrophin protein in the muscles, which slowly progresses over time. On average, boys with Duchenne muscular dystrophy are robbed of their ability to walk by age ten, and most are lucky to ever reach their late twenties.
Although, this disease has now drastically changed our family, we aren’t going to let it progress without a fight. But it takes more than just our family to fight this horrible disease. Last year, the Muscular Dystrophy Association spent almost 100 million dollars across research projects aimed at finding a cure for over 43 neuromuscular diseases – but the funding can’t go on without donations from people who care.
We walk because no child should have to live a shortened live with no hope for a cure.
Friends – let me be perfectly honest – the science behind the cure is here and the only thing between us and saving our son’s life is money. 2013 turned out to be an amazing year for medical advances in a cure to DMD, but it costs millions of dollars each year to conduct clinical trials for each possible cure scientists have discovered.
We walk because our son is too young to understand the journey he has been forced to take.
Please help us find a cure and save our son’s life. ANY amount you can donate helps fund a cure for DMD and goes directly to funding research, sending a child to MDA summer camp, or assisting families like us who are dealing with a neuromuscular disease.
We walk because truly living means doing something that someone can never repay you for.
Help me cross the Muscle Walk finish line and FINISH STRONG! Join me at the Muscle Walk and we’ll have a great time for a great cause. Better yet, make a donation today, and help me reach my fundraising goal to help support the families who depend on MDA. Together, we grow strong.
We walk for everyone who cannot.
Make a Muscle. Make a Difference.
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