I'm participating in the MDA Muscle Walk and I need your help! This year I am walking for JR (in my picture)! JR was my camper when I was a counselor at MDA Camp. We have had so many great memories over the past 8 years. This July JR underwent a "routine" Spinal Fussion Surgery (routine for someone with a muscle disease) when he had many complicaitons post surgery. JR's family almost lost him on several occasions though he has started to turn the corner. The first thing JR said was, 1. What Happened--am I going to live? 2. Am I going to miss the whole school year? 3. Can I go to my last summer of camp? I am walking so he has the opportunity to make friends that understand what he has gone through at MDA Summer Camp--where the week is all about acceptance and understanding.
As many of you know I have been working with Muscular Dystrophy Association for the past 5 years, though I also volunteered for a few years prior to accepting my position. After my first summer at camp, I met so many wonderful kids that may not have physical strength but have more emotional strength that I could even dream to have. After that first week at camp I made a promise to myself that I would join the fight to a cure for all of the children I met and for the children who have lost their battle way too young. I'm walking in the MDA Muscle Walk this year because I want to continue to support and empower youth and children living with neuromuscular diseases and help provide families hope of a tomorrow.
The common person has heard of muscular dystrophy but many do not know that MDA covers over 40 muscle diseases under our umbrella. These diseases are extremely rare, and there is NO cure for them. I am walking to create AWARENESS to my friends and family. Did you know 1 in 40 people are a carrier of Spinal Muscular Atrophy--SMA is the leading genetic cause of death in children? 1 in 6000 boys born, will be born with Duchenne Muscular Dystrophy. Doctors don't know why someone gets ALS and usual strikes healthy individuals between the ages 40-60 at any given time and has a life expectancy of 3-5 years after diagnosis.
Make your muscles work for something good. Please sponsor my effort with a donation or join my team together we will create a world without muscle disease! If you can help out with a donation, I thank you in advance. YOU have the power to make a world without muscle disease.
Has someone made you smile today? Donate $13 dollars for every muscle that it takes to smile or whatever amount you are able to every amount helps!
Make a Muscle. Make a Difference.
Linda And John Adolphson
Rose and Paul Lundequam