In 2011, we learned our son, Reid, has Spinal Muscular Atrophy (SMA). SMA is a genetically inherited muscle disorder. Through the diagnosis process, we learned that we are genetic carriers for SMA as well as approximately 1 in 35 Americans. Unfortunately because of his muscle disorder, he is unable to walk and has overall muscle weakness. As his parents, we decided to get involved to raise funds and awareness to support ongoing research toward finding a treatment or cure. Both of us have become quite involved in the Muscular Dystrophy Association (MDA), as SMA is one of the 40+ disorders that the MDA family covers. Our team is "TEAM REID - BABST CALLAND" and we have made a muscle and made a difference for Reid by raising over $70,000 in the past 6 years to fund research for SMA. This past December, the FDA approved the first ever treatment for SMA which could help thousands of children and adults with SMA by slowing the progression of the disorder, and possibly allowing them to increase muscle strength. We believe this treatment will be a bridge to finding a cure to SMA, and so we must continue to support the MDA and affected families so that our children can live to see that day.
The ability to walk is not a given, it is a gift. We ask you to share your gift with the MDA to help all of the children and adults who would love to walk with us someday.