In 2011, we learned our son, Reid, has Spinal Muscular Atrophy (SMA). SMA is a genetically inherited muscle disorder. Through the diagnosis process, we learned that we are genetic carriers for SMA as well as approximately 1 in 35 Americans. Unfortunately because of his muscle disorder, he is unable to walk and has some overall muscle weakness. We have become quite involved in the Muscular Dystrophy Association (MDA), as SMA is one of the 40+ disorders that the MDA family covers. Our team is "TEAM REID"and we have made a muscle and made a difference for Reid by raising over $50,000 in the past 5 years, toward finding a treatment or possibly a cure for SMA. Over time, we have learned that the ability to walk is not a given. It is a gift. We ask you to share your gift with the MDA to help all of the children and adults who would love to walk with us someday.
On Christmas eve of 2016, we learned that the USFDA approved the first ever treatment for SMA! We are overwhelmed by the possibility that Reid and many other children may soon be able to get this treatment and start to gain muscle strength. Let's celebrate this opportunity together, and continue to raise funds toward finding and funding more treatments for SMA and other disorders that MDA hopes to cure!