In honor of Sherm Sutter.
This year with the support of the BigRing Flyers we have created a team titled ‘The ALS Breakaway’. Our fundraising goal as a team is $3000.00 (details about this organization and how they utilize funds raised is detailed below). Team Captain, Courtney Olek, watched her Grandpa suffer an agonizing end after being diagnosed with ALS. This team is in honor of Sherm- a vibrant prankster, husband, grandpa, father, woodworker, with a love for road tripping and April fools day. This team is held together with anxious optimism to support community services, research, and so that those diagnosed and their families are supported; and maybe even someday soon with your donations to this organization, no one will have to hear “I’m sorry, the test results show you have ALS. We need to talk about getting your affairs in order”, ever again.
We need your help to raise money and awareness!
ALS or Amyotrophic Lateral Sclerosis, Lou Gehrig’s. A degenerative neuromuscular disorder of motor neurons. ALS is an intimate malicious cousin to Parkinson’s and Alzheimer’s. Those diagnosed and their family members’ will unquestionably experience an unhurried debilitating death that the intellect stays completely intact for. The loss of daily physical normalcies that we each take for granted slowly removed from daily grasp for each affected. Daily freedoms like walking, running, eating, hugging, brushing your teeth, flipping the pages of a book, and eventually breathing is stolen from those diagnosed.
Who is MDA and why should you donate your money to THIS organization?
MDA (Muscular Dystrophy Association) works to raise money, awareness, research, and hope to individuals living with ALS, muscular dystrophy, and related life-threatening diseases. MDA was the first non-profit to receive the AMA’s (American Medical Association) Lifetime Achievement Award for significant and lasting contributions to the health and welfare of humanity. 90% of all donations are used for fundraising, professional and public health education, research, and patient and community services, 10% of donations to business overhead (management etc) in 2017.
*Life expectancy is two to five years from diagnosis
*Once diagnosed ones ability to walk, dress, write, speak, swallow, and breathe will inevitably start to decline, all while ones mental status stays completely intact. In later stages of disease total paralysis/ loss of voluntary muscle control will lead to their death, if aspiration pneumonia or other medical complication has not interfered first.
*Approximately 6,000 people are diagnosed each year. Or two people per 10,000.
*ALS is a non-discriminatory disease. It occurs throughout the world with no racial, ethnic, or socioeconomic boundaries
*Cost is significant for those diagnosed