Please help Kierra and our family raise research funds for the Muscular Dystrophy Association. Kierra is now thirteen years old and was diagnosed at age two. She’s an amazing kid. Last year, she had the opportunity to star in a short film about adapting to her disability and you can view that video above.
Kierra was the 2016 and 2017 North Carolina MDA Ambassador, and Rob is on the planning committee for our largest fundraiser - Muscle Team. Together, we're raising awareness for Muscular Dystrophy and fundraising to support research and clinical care.
Muscular dystrophy, ALS, and related diseases can take away everyday freedoms like walking, running, hugging and even breathing. MDA helps fund ground-breaking research across diseases, provides critical care from the first day of diagnosis and empowers families with services and support in hometowns across America.
The FDA approved several new drugs in the last two years that are providing amazing results to individuals with Duchenne Muscular Dystrophy and Spinal Muscular Atrophy. Many of Kierra's friends will see direct improvements through those treatments. While these won't help Kierra's Ullrich Myopathy, it's a huge indication of the progress with research. We are encouraged by early studies underway for her condition.
Please join us by making a donation! With your support, we'll move toward a future in which kids and adults with muscular dystrophy, ALS, and related life-threatening diseases live longer and grow stronger.
Thank you for your consideration!!!
Kierra and our entire family