Welcome to My Personal Page
Aloha Family and Friends!
The freedom to walk, to talk, to run and play. To laugh, to hug. To eat. To breathe. Each day, these everyday freedoms are taken away from kids and adults with muscular dystrophy, ALS, and related diseases that severely weaken muscle strength and mobility.
I am excited to let you know that I will be running the Chicago marathon on October 13, 2019! I am running this to raise money for a great organization, the Muscular Dystrophy Association (MDA). As some of you know, I am the neuromuscular nurse at the UW Neurology Clinic where I spend time taking care of patients with various nerve and muscle diseases including forms of neuropathy, ALS, spinal muscular atrophy (SMA), muscular dystrophy and myasthenia gravis to name a few. Every day it is my pleasure to work with this population, as they are truly grateful for all of the help and support given to them, and these are remarkable patients with equally amazing families. They have touched my heart more than I can express. These patients and families are thankful even when I can't help them or if their needs cannot be met in a timely fashion. I feel blessed to be able to work with them, it is truly a humbling experience.
Until recently, there have not been many effective treatments for many of these conditions, but in the recent years there have been some life-changing therapies that have become available including a new gene modifying treatment for SMA. In order to help these patients and to make further progress on new treatments, organizations like MDA are vital to provide support. MDA anticipates more new treatments in development during the next five years than in the previous five decades combined. This is why I am running this marathon with the hope to raise money to help these truly remarkable people and this great organization.
I have never run a 5K, much less a marathon and have to admit I am a bit scared to do this. I started training on my treadmill in February and ran my first race in May. It was the first time I had run outdoors and on pavement! I successfully completed the Lake Monona 20K (12.4 miles in 2 hrs 27 min). I am running the Chicago Marathon as part of a team, "UW Neurology." Stephanie Gardon a neurologist that I work for (neuromuscular section director at UW and the MDA clinic director) is our team captain. Stephanie's husband Mike is the only one on our team who has run this distance before. He has been our biggest supporter so far with constant encouragement, training tips and a belief that this is attainable. As a side note, I chose to run in Chicago because it is a very flat race!
I ask that you consider donating to MDA through our team, and if not, please just think about me on race day, cheer for me and say a little prayer! I have a minimum goal of $1,450 but hope to surpass this! Your support will help the MDA bring help and hope to the families it serves.
Thank you all for your support, love and encouragement!