For those of you who have never met Finn, he is the son of our good friends the Sawhills. He is 8 years old and has a rare nueromuscular disorder called Nemaline Myopathy. This disorder effects all of Finns muscles but most notably through facial muscles and those muscles that help him breathe. He is not ventilator dependent, but has a trach and vent to aid him in staying healthy and continuing to be awesome. The MDA has grants out to 4 separate researchers specific to finding treatments and cures for Nemaline Myopathy. Your fundraising dollars go towards these advancements as well as the research for all of the other diseases (Duchenne, ALS, SMA, CMD and a ton of others).
Welcome to My Personal Page
As a member of MDA Team Momentum, I'm dedicating my miles, muscles and personal finish line to helping kids and adults living with muscular dystrophy, ALS and related muscle-debilitating diseases live longer and grow stronger.
Every step I take while training for and racing in the marathon will help MDA fund groundbreaking research to accelerate treatments and cures and provide care and support for families who are counting on us.
This is where you come in. Your donation will help save and improve the lives of individuals with muscular dystrophy and the families who love them. Thanks in part to MDA Team Momentum participants and donors, MDA anticipates more new treatments in development during the next five years than in the previous five decades combined. Let's keep and build this momentum. Please consider making a donation to support me in my upcoming race today. Thank you in advance for your support!