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As a member of MDA Team Momentum, I’m dedicating my miles, muscles and personal finish line to helping kids and adults living with muscular dystrophy, ALS and related muscle-debilitating diseases live longer and grow stronger.
On November 16, I attended the Berks County Black-N-Blue Ball at Classic Harley Davidson benefiting the Muscular Dystrophy Association. I was overjoyed to witness just how much this event has grown over the years.
At the table seated next to me was an MDA family with a teenaged son who was diagnosed with muscular dystrophy. The mother was summoned to the stage, accompanied by her son in a wheelchair. She spoke with such purpose and determination about her son’s condition and how much the MDA means to them. She spoke of the treatments he receives, the MDA kids camp that has come to mean so much to him, and the care and support the family receives.
Later in the evening, a young man named Ethan made his way to the stage to talk about his journey and the challenges he and his family face. He spoke of the groundbreaking research and advancement in treatment options that bring us closer to a cure. He went on to talk about the new drug therapy he is undergoing and how it has made him stronger. The young man then stood up from his wheelchair and stood unassisted. THIS is a monumental moment. During Ethan’s speech, I watched the mother at the next table smile at him and nod along. As Ethan stood up from his wheelchair, I watched the tears begin to stream down the woman’s face. She buried her face in her hands and wept tears of joy. She wiped her face, pointed at her son, smiled, and said, “that’s going to be you. “
On March 17, 2019, I will be running the NYRR United Airlines Half Marathon in New York City as a member of MDA Team Momentum to help raise funds and awareness for the MDA.
Hope. This is what your donation to the MDA provides. A future filled with milestones and monumental moments. Your donation will help save and improve the lives of individuals with muscular dystrophy and the families that love them. Please take a moment during this blessed season of hope to support me in my journey.
Thank you in advance for your support. Many blessings.